Muscular Dystrophy Foundation of South Africa

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Muscular Dystrophy Foundation of South Africa

Since 1974

Profile Overview

  • -15

  • Johannesburg, Gauteng, South Africa

  • 1974

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About Company

Our Goals

 

The Foundation’s role within social integration, support services, awareness programmes and Muscular Dystrophy diagnostic research support is to:

 

  • Assist affected persons and their families by providing information, support, and referrals to genetic counselling and health facilities.

  • Support affected people with specialised assistive equipment.

  • Create public awareness on muscular dystrophy issues and disability.

  • Strive for the recognition and protection of the rights of people affected by muscular dystrophy as a disability.

  • Support and promote diagnostic research into the causes and treatment of muscular dystrophy.

  • Generate funds to support and sustain our work.

  • Collaborate and communicate on a national, provincial, international, governmental, and non-governmental basis on policy matters relating to all aspects of muscular dystrophy.

  • Assist individuals to form self help and support groups.

  • We also strive to keep our members updated via the MDF website and MDF magazine.

 

Programmes and Services

 

Social Integration and Support Services: 

 

Our role is to support people affected by Muscular Dystrophy and their families by:

 

  • Offering comprehensive medical information and regular news updates

  • Providing referrals to neurologists, professional counsellors, and specialised health services 

  • Assisting with specialised disability equipment

  • Facilitating contact to support groups 

  • Providing emotional support

  • Integration into mainstream society